More funding for research on Down Syndrome
More funding for research on Down Syndrome EDSA members were asked to write a letter to their members of the european parliament (MEPs). The aim of this action was to … Read more
News from Science
Roche CLEMATIS trial discontinued
Statement on CLEMATIS trial June 28, 2016 The CLEMATIS trial was a Phase II study investigating the efficacy and safety of basmisanil (RG1662) in adults and adolescents with Down syndrome. … Read more
EDSA supports International Clearinghouse for Birth Defects
March 3, 2016 marks the second annual World Birth Defects Day (WBDD). WBDD provides a platform to advocate for increased economic, political, and intellectual support to improve birth defects surveillance, … Read more
Poseidon Project
POSEIDON is a 3 year project which has been sponsored by the European Commission. It aims to create information technology which will support people with Down’s syndrome achieve a greater level of independence in … Read more
UN recognise World Down Syndrome Day
EDSA welcomes the decision by the United Nations (UN) to officially recognise and endorse World Down Syndrome Day, 21st March. Recognition will help to safeguard the rights of individuals with Down … Read more