English – European Down Syndrome Association (EDSA)

English

On this page you will find English-language books, magazines and films about Down syndrome.


Author: Jean-Adolphe Rondal, Juan Perera, Donna Spiker
Title: Neurocognitive Rehabilitation of Down Syndrome: Eearly Years
Publisher: Cambridge University Press
Year of Publication: 2011
ISBN: 978-1107400436
Target group: Developmental clinicians, pediatricians, neuropsychologists and other health professionals
Subject: Neurocognitive rehabilitation of children with DS

Short Description:
Down syndrome is one of the most commonly occurring developmental disorders and it is now possible to conceptualize and define opportunities for neurocognitive rehabilitation for those with the condition. This book describes how early cognitive intervention in children with Down syndrome can be carried out, and can reduce, or compensate for, the major deficits characteristic of the condition. This comprehensive account relates the neurocognitive approach to the major therapeutic endeavors in the neighboring fields of neurogenetics, experimental environmental enrichment, molecular genetics, pharmacology, pediatrics and cardiology for infants with Down syndrome. Neurocognitive Rehabilitation of Down Syndrome provides the guidance required to establish effective rehabilitation programs, and is essential reading for developmental clinicians, pediatricians, neuropsychologists and other health professionals.


Author: Dennis McGuire & Brian Chicoine
Title: Mental Wellness In Adults With Down Syndrome
Publisher: Woodbine House
Year of Publication: 2006
ISBN: 978-1-890627-65-2
Target group: Parents, Professionals and Carers
Subject: Mental Wellness & Psychosocial Issues

Short Description:
In this groundbreaking book, the founding directors of the Adult Down Syndrome Center of Lutheran General Hospital in Park Ridge, Illinois – the first and premier facility of its type in North America – share nearly 30 years of combined experience, treating over 3000 adolescents and adults with Down syndrome aged 12 to 83. This is an invaluable resource for parents, mental health professionals, teachers and caregivers who want to understand how to promote mental health and resolve psychosocial problems in people with Down syndrome.


Author: Mark Selikowitz
Title: Down Syndrome – The Facts
Publisher: Oxford University Press
Year of Publication: 2008 (3rd Ed)
ISBN: 978-0-19-923277-2
Target group: Parents and Carers
Subject: General introduction to Down’s syndrome and the early years

Short Description:
The new edition of this highly regarded book for parents of children with Down syndrome covers a number of important new developments in research and clinical practice that have occurred in the field in recent years. These include several newly recognised medical conditions that are known to occur more commonly in patients with Down syndrome, for example, glaucoma, gastrointestinal malformations, feeding difficulties, gastro-oesophageal reflux, coeliac disease, and diabetes. This expanded edition also includes new recommendations regarding routine health checks in line with those of the UK Down Syndrome Medical Interest Group (UKDSMIG). Additionally the book covers new prenatal screening methods which have been developed to identify Down syndrome during pregnancy.


Author: Cliff Cunningham
Title: Down Syndrome – An Introduction For Parents And Carers
Publisher: Souvenir Press
Year of Publication: 2006 (3rd Ed)
ISBN: 0-285-63697-9
Target group: Parents and Carers
Subject: General introduction to Down’s syndrome and the early years

Short Description:
Upated to reflect the most current information in the field, this practical reference book addresses the early reactions and feelings that parents may have as well as how a family can adapt when a child is diagnosed with Down syndrome. From birth to adulthood, the mental, motor, and social development of those living with Down syndrome are explored in detail. Drawing from a comprehensive study of more than 160 children born with Down syndrome—the largest survey of its type ever carried out—this overview provides a sympathetic and understanding approach to Down syndrome, allowing parents to make the best decisions for their children’s future and their own.


Author: Terri Couwenhoven
Title: Teaching Children With Down Syndrome About Their Bodies, Boundaries, And Sexuality
Publisher: Woodbine House
Year of Publication: 2007
ISBN: 978-189062733-1
Target group: Parents, Carers and Professionals
Subject: Puberty, Sexuality and Relationships

Short Description:
Parents of children with Down syndrome and other intellectual disabilities are accustomed to paying close attention to their child’s physical, cognitive, and emotional development. This proactive approach should also include their child’s sexual development, which for many parents may not seem as obvious or urgent, especially to those with young children. Drawing on her unique background as both a sexual educator and mother of a child with Down syndrome, the author blends factual information and practical ideas for teaching children with Down syndrome about their bodies, puberty, and sexuality. This book gives parents the confidence to speak comfortably about these sometimes difficult subjects.In an easy-to-read, non-clinical style, the book covers relevant issues and concerns for children of all ages, such as: labelling & explaining private body parts; identifying & expressing emotions; respecting personal space; teaching self-care & hygiene; understanding norms of privacy; understanding gender identity; and, showing appropriate levels of affection. It also covers later issues that affect teenagers and young adults, including: anticipating and understanding puberty; dealing with periods, bras for girls; experiencing erections, wet dreams for boys; relating to the opposite sex; sharing parental values about sexuality; explaining sexual relationships; preventing sexual abuse; and, understanding how Down syndrome affects puberty & fertility rates.Each chapter highlights important points with key messages, teaching activities, parental pauses, and anecdotes, all of which prompt readers to stop and consider concepts or values associated with a particular topic. The final chapter covers the special concerns of parents who are now teaching teenaged or adult children about sexuality for the first time. It concludes with extensive appendices containing invaluable teaching materials and illustrations of body parts and functions.


Author: Maryanne Bruni
Title: Fine Motor Skills For Children With Down Syndrome
Publisher: Woodbine House
Year of Publication: 2006, 2nd Ed
ISBN: 978-1-890627-67-6
Target group: Parents, Carers and Professionals
Subject: Fine Motor Development

Short Description:
The updated and expanded 2nd edition of “Fine Motor Skills in Children with Down Syndrome” continues to be a popular, practical guide to understanding fine motor skills in children with Down syndrome and helping them develop these skills from birth through early adolescence. The first edition won a Parent’s Choice Award in 1999. The author, an occupational therapist who has worked extensively with children with Down syndrome, is also the parent of a teenager with Down syndrome. She offers parents and professionals dozens of easy, home-and school-based activities, illustrated with black and white photos, which help children gradually acquire the skills they need for fine motor development. Readers learn how to incorporate work on fine motor skills into everyday activities and routines and to emphasise tasks that children can use throughout life – play, self-help, printing, cutting with scissors, and computer use. New to this edition is a chapter on sensory processing and how the sensory system affects behaviour and learning in children with Down syndrome. Parents learn strategies that can help children handle various sensory problems so they can continue to learn daily living skills. Bruni includes new information on determining when a child is ready for ‘pre-printing’ activities (things a child can do to prepare for trying to print letters) and how to introduce related concepts (up and down; top and bottom; start and stop; left and right). The 2nd edition also includes more information on ways to help children learn self-help skills, such as dressing, using a fork and spoon, and becoming potty trained. This new and improved edition gives parents and professionals the expertise and confidence they need to help children build fine motor abilities and become more independent. This book is useful for parents of children with Down syndrome, early intervention specialists, occupational and physical therapists, and teachers.


Author: Patricia C. Winders
Title: Gross Motor Skills In Children With Down Syndrome
Publisher: Woodbine House
Year of Publication: 1997
ISBN: 0-933149-81-6
Target group: Parents, Carers and Professionals
Subject: Development of gross motor skills

Short Description:
Children with Down syndrome master gross motor skills – everything from rolling over to running but need additional help and encouragement to maximise development. In this book the author, a physical therapist, shares her experience gained from sixteen years specialising in the motor development of children with Down Syndrome. This book provides parents and professionals with essential information about motor development including the impact of temperament and the effect of physical and medical conditions associated with Down syndrome.


Author: Libby Kumin
Title: Early Communication Skills For Children With Down Syndrome
Publisher: Woodbine House
Year of Publication: 2008
ISBN: 978-1-890627-54-6
Target group: Parents, Carers and Professionals
Subject: Speech and Language

Short Description:
As children with Down syndrome reach age 6, they encounter more complex speech and language demands in their learning and relationships with others. This is when gaps in communication abilities between children with Down syndrome and their typically developing peers begin to widen. This book provides parents and professionals with the information and resources they need to improve their child’s communication at school, at home, and in the wider community.Written by Dr Libby Kumin, an expert in Down syndrome and communication, this is the only book about speech and language issues for children with Down syndrome ages 6 to 14, and is the sequel to “Early Communication Skills for Children with Down Syndrome”. Encouraging and parent-friendly, it covers the scope of speech and language issues important for this age group, from understanding language pragmatics to building conversation skills and from using augmentative and alternative communication systems to improving speech intelligibility.


Author: Patricia Logan Oelwein
Title: Teaching Reading To Children With Down Syndrome
Publisher: Woodbine House
Year of Publication: 1995
ISBN: 0-933149-55-7
Target group: Parents, Carers and Professionals
Subject: Learning To Read

Short Description:
Teaching Reading to Children with Down Syndrome presents a reading program for children with Down syndrome which effectively meets each child’s unique learning needs and style. The reading method and lessons presented here are specifically designed to be motivating, fun, and rewarding. Using flash cards, games, charts, and books, the program emphasizes that most children with Down syndrome are visual learners. Parents can customize lessons to capture their child’s interest and set the learning pace to a level for greatest success. This step-by-step guide to reading allows parents to work with their child at home and helps them coordinate reading lessons with teachers, ensuring the continuity of their child’s education year after year.


Author: Susan J. Skallerup
Title: Babies With Down Syndrome
Publisher: Woodbine House
Year of Publication: 2008, 3rd Ed
ISBN: 978-1-890627-55-3
Target group: Parents, Carers and Professionals
Subject: Babies with Down syndrome

Short Description:
It is completely revised and updated in a new, third edition. Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents’ suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book’s contributors are parents of children with Down syndrome.


Author: Siegfried M. Pueschel
Title: Adults With Down Syndrome
Publisher: Paul H. Brookes Publishing Co.
Year of Publication: 2006
ISBN: 1-55766-811-6
Target group: Parents, Carers and Professionals
Subject: Adults With Down Syndrome

Short Description:
Siegfried Pueschel brings us this practical volume on adults with Down syndrome. His previous books for parents of children with Down syndrome and adolescents with Down syndrome have been bestsellers. Now, with people with Down syndrome living longer than ever before, this edited text gathers many highly respected experts – including individuals with Down syndrome themselves – to discuss the experiences and needs of adults with Down syndrome. This accessible book will help readers promote the health and well being of individuals with Down syndrome. The book contains a good mixture of clinical, social, legal, and personal information. After a review of the medical and psychiatric conditions that occur in people with Down syndrome, the book discusses support apparatuses (positive behavior support, sexual supports, person-centered planning), living in the community, work, recreation, guardianship, and advocacy. Finally, sixteen stories from adults with Down syndrome are included to give a human face to the discussion. The narrators tell of their life experiences in their own words.


Title: Down’s Syndrome Association Journal
Publisher: Down’s Syndrome Association – www.downs-syndrome.org.uk
Number of issues per year: Bi-Annual
ISBN: –––
Target group: Members of the UK Down’s Syndrome Association – Parents, Carers, Relatives, Professionals


Title: Down Syndrome The First 18 Months
Publisher: Woodbine House / www.woodbinehouse.com
Length: 108 Minutes
ISBN: –––
Target group: Parents and Carers
Subject: General introduction to Down’s syndrome and the early years

Short Description:
Thirteen leading medical and developmental experts on Down syndrome, experienced parents, and infants and toddlers with Down syndrome are brought together in this heartwarming DVD to inform, inspire, guide, and support.