Conference in Moscow – European Down Syndrome Association (EDSA)

Conference on the occasion of the 20th anniversary of Downside Up Charitable Fund

Logo 20 years– This year the Downside Up Charitable Fund in Moscow celebrated its 20th anniversary with a national conference, themed: “People with Down Syndrome and other special mental needs: Right for the future”. Downside Up Charitable Fund is an EDSA member since many years.

Over 300 participants from 60 Russian cities came to inform themselves in numerous lectures and workshops and to exchange experiences and good practices.

On Friday 1st December the conference was opened by Anna Portugalova, director of Downside Up and Florence Garrett, a young woman with DS (see picture at the top). Aleksander Borovykh, the strategy director of the Charitable Fund give an overview of the situation of people with DS in Russia.

In the following panel ten different short lectures were given in plenum. These topics were then presented more in detail in the afternoon and discussed with the audience in round table sessions.The evening was dedicated to the Award ceremony. Lot of individuals and groups were allocated for their outstanding work.

On Saturday, 2nd December 16 workshop-sessions “Effective practices” were offered and the issues discussed in smaller groups. After lunch families with their children were invited to a festival with theater- and dance performances, different sport and fun activities for the children, like a mini-football training.

DS experts from different countries invited to Moscow

Downside Up invited a few DS experts from abroad to enrich the conference with their contributions.

Gert de Graaf from the Stichting Down Syndroom in the Netherlands presented his research work, which provided the basis for an overview of birth and population prevalence for Down Syndrome in Russia.

Amy Allison, a therapist from DS Guild of Greater Kansas City, USA presented a model on how to build a support network for individuals with DS.

Veronique Garrett, who with her daughter Florence were the instigators of the Downside Up Charitable Fund had a talk about how an active social life for people with special mental needs can be organized.

I was very honored to be one of the invited speakers. My topic was “Education in mainstream and special schools under the aspect of preparing for a job”.

One of the workshops on the saturday was given by Christel Manske, from Hamburg, Germany.

Speaker Gert de Graaf, Stichting Down Syndroom, Netherlands
Gert de Graaf, Stichting Down Syndroom, Netherlands
Speaker Amy Allison, Down Syndrom Guild of Greater Kansas City, USA
Amy Allison, Down Syndrom Guild of Greater Kansas City, USA
Speaker Veronique Garrett, chief instigator of Downside Up
Veronique Garrett, chief instigator of Downside Up
Speaker Alexander Borovykh, Strategy Director Downside Up
Alexander Borovykh, Strategy Director Downside Up
Speaker Cora Halder, German Down Syndrom InfoCenter, Germany
Cora Halder, German Down Syndrom InfoCenter, Germany

Every foreign speaker had its own personal interpreter, so was able to follow the lectures. In the weeks before the conference these interpreters had translated the presentations in Russian language. They also translated our talks for this very interested audience. Besides that they were always on our side and also helped us through the very challenging subway system in Moscow, so that we could not get lost.

The conference was very well organized. Lectures were short and to the point. Experts from different parts of Russia talked about: the situation of people with DS in Russia; perinatal support, effective models of Early Intervention; career guidance and employment; supported living, social orphanhood and other topics.

On the website of Downside Up you can find a detailed report about the conference (currently only available in Russian) as well as many photos of the event.

Cora Halder