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World Down Syndrome Day

All people with Down syndrome must have opportunities to live fulfilling lives, included on a full and equal basis with others, in all aspects of society. The 2030 UN Agenda for Sustainable Development, a global plan of action for people, planet and prosperity, pledges that “no one will be left behind”.

The reality today is that prevailing negative attitudes, low expectations, discrimination and exclusion, ensure that people with Down syndrome are left behind. There is a lack of understanding of the challenges individuals face across their lifetimes and a failure to support them with the opportunities and tools needed to live fulfilling lives. People with Down syndrome and those who support and work with them must be empowered to advocate for these opportunities. They can then reach out to key stakeholders to ensure they understand how to provide these opportunities and in turn disseminate this message to bring about real change.

On World Down Syndrome Day, Thursday 21 March 2019, we call upon every person with Down syndrome to tell the world to “leave no one behind!”.

For World Down Syndrome Day 2019, EDSA has asked their members to show people with Down syndrome taking part in activities whether in schools, workplaces, in social, political and public life, culture, media, leisure and sport.
Starting on 1 March, we will be showing 21 examples from across Europe to make it clear that no one must be excluded.

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows Vincent with the Minister of people with disabilities. Text to the photo shown: Vincent Cuel is the vice-secretary of Trisomie 21 France and represents the federation at conferences and meetings.

WDSD 2023 “With-Us-Not-For-Us” – France

Hello, My name is Vincent Cuel, I am vice-secretary of the France Down Syndrom federation. I am present at the boards of the association, I take part in discussions and … Read more

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows Jean next to an advertising display of the association. In his hands he holds an advertisement that says: Get involved! Text to the photo shown: Jean participates in decisions making for the Association

WDSD 2023 “With-Us-Not-For-Us” – Belgium

Jean Mylonas is a full member of the General Assembly of Inclusion asbl.As an effective member, he votes and participates in decisions making for the Association. For him, this commitment … Read more

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows Montserrat Vilarrasa in a white dress with floral motifs. Text to the photo shown: Montserrat Vilarrasa works at the City Council in Barcelona

WDSD 2023 “With-Us-Not-For-Us” – Spain

I am Montserrat Vilarrasa, an activist for the human rights of people with intellectual disabilities. I am a member of the Municipal Institute of Disabled Persons in Barcelona (Spain) and … Read more

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows a group of the advicer team - four women and six men. Text to the photo shown: The adviser team of the Fundació Catalana Síndrome de Down

WDSD 2023 “With-Us-Not-For-Us” – Spain

We are the Montserrat Trueta Human Rights Assembly of the Catalan Down Syndrome Foundation (FCSD). We are a large team of people with Down Syndrome and in a situation of … Read more

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows Sandra throwing her ballot paper into the ballot box. Some other voters can be seen in the background. Text to the photo shown: Sandra voted for the first time at the 2023 elections for the President of the Czech Republic.

WDSD 2023 “With-Us-Not-For-Us” – Czech Republic

Sandra Dusilová Sandra voted at the elections for the President of the Czech Republic for the first time this year and she took it very seriously. At home we had … Read more

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows a half-length portrait of Fiona. She is wearing a light blue polo shirt and a scarf. Text to the photo shown: Fiona Dawson works to influence change and promote the rights and independence of others.

WDSD 2023 “With-Us-Not-For-Us” – Scotland

Fiona Dawson, a life member with Down’s Syndrome Scotland works tirelessly to influence change and promote the rights and independence of others. Fiona helped to create a Human Rights Town … Read more

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows Fintan Bray in a white shirt sitting at his desk. Text to the photo shown: Fintan Bray, elected to a senior position within a political party.

WDSD 2023 “With-Us-Not-For-Us” – Ireland

On the 1st October, 2022 I got elected on to the Ard Comhairle of Fianna Fáil. I believe I am the first person with Down Syndrome to be elected to … Read more

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows Bentine standing between the two prime ministerial candidates, a woman and a man. Text to the photo shown: Bentine meeting the two Norwegian prime ministerial candidates, before she votes in the election.

WDSD 2023 “With-Us-Not-For-Us” – Norway

Bentine Borge is 21 years old. She has chosen to do theatre, dance, music and lectures full-time, she is also active on TikTok with many followers. Since Bentine was seven … Read more

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows a man with Down syndrome throwing his ballot paper into the ballot box. Text to the photo shown: Our Vote counts! Being an active citizen also means exercising your right to vote.

WDSD 2023 “With-Us-Not-For-Us” – Italy

Our vote counts Being a citizen means belonging to a community and having rights but also duties to respect.An active citizen is someone who participates in daily and social life … Read more

Poster of the 2023 EDSA WDSD Poster campaign “With Us Not For Us”. The photo shows a group of people with Down syndrome sitting around a table discussing. Text to the photo shown: ONaomi (Pace Gasan) discusses and decides in the DSA Malta Committee.

WDSD 2023 “With-Us-Not-For-Us” – Malta

Ms Naomi Pace Gasan is one of the committee members in the Down Syndrome Association Malta Committee.  Here the committee is discussing the points on the agenda and Naomi is … Read more

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Annual General Assembly (AGA) 27 to 29 October 2023 in Madrid
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Latest News

  • EDSA Logotype

    Annual General Assembly (AGA) 2023 in Madrid

    We are happy to invite our members this year to a face-to-face annual meeting, which will take place in Madrid from 27 to 29 October… Read more

    Published on 10. May 2023

  • Logo EDSA webinar

    Down Syndrome Regression Disorder

    Datum: Tuesday, 16 May 2023, 17.00 – 18.00 CET, per Zoom Speaker: Jonathan D. Santoro, MD Bio Translation: Croatian, Czech, French, German, Turkish and Ukrainian… Read more

    Published on 27. April 2023

  • Down Syndrome Research Forum April 2023

    The Down Syndrome Research Forum is an established, international meeting of researchers and practitioners interested in advances in our understanding of how to best meet… Read more

    Published on 4. April 2023

Illustration of Coronavirus (Covid-19)CORONAVIRUS SPECIAL PAGE

On our Coronavirus (COVID-19) Special Page we have compiled a list with helpful links to resources from organizations in various countries.
To Coronavirus Special Page

Logo EDSA webinars

November 2020 EDSA startet with regular webinars. On the third Wednesday of every month internationally renowned speakers talk about important Down Syndrome-related topics. After the lecture there is the possibility asking questions to the speaker. Read more

Logo “invite an expert!“

It is one of EDSAs goals to share experiences as well as good practices and support each other with information and expertise. Within the program “Invite an expert” an EDSA member can invite a Down Syndrome professional from another member organization on a special topic to a conference or workshop, being organized in their own country. Read more

Logo EDSA Family

As EDSA, one of our aims is to build bridges between families who have a child or a relative with Down syndrome and are living in different countries. Read more

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Recent Articles

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