Family Exchange Programme (FEP)

Visiting friends across borders

The EDSA-Family Exchange Programme facilitates families with a child with Down syndrome in different countries to get to know each other.


Meeting a family in the Netherlands

Since the time their children were babies, the families of David de Graaf in the Netherlands and Andrea Halder in Germany have had contact with each other. They have been visiting each other many times and always knew what the others were doing. They exchanged experiences about mainstreaming, about intervention and education and as the youngsters grew older, about hobbies, work, independent living etc.

They learned a lot about possibilities and problems in their respective countries and the good contact has always been a source of inspiration and motivation. Andrea and David are always looking forward to see each other again, they are united by some interesting experiences, like a participation in the EU Parliament for people with a disability,

The pictures show the visit of Andrea and me, her mother, in the Netherlands August 2017.  This time we all met at the working place of David, a teahouse in a national park. Three times a week he has a job as a waiter, and so was he the one who served the coffee, the sandwiches and the ice-cream.

A young women with Down syndrome with her mother and host family having a cup of tea in a park teahouseYoung woman with Down syndrome having a chat with her hostessA waiter with Down syndrome is serving coffee to a young women with Down syndromeYoung woman and young man with Down syndrome smiling at the camera.Young woman with down syndrome talking with her mother

We spoke about job possibilities, working contract, what people with DS earn in both our countries and also about housing options. We see a lot of common problems, but also interesting alternatives in both Germany and the Netherlands. On the whole we know, there is still a lot of work to do.

Both families, de Graaf and we, belong to the pioneers in the DS-field. We dearly hope that younger parents will go on extending possibilities and services for people with Down syndrome. There is a great risk that service and support will be reduced again.

Therefor it is necessary to keep in touch with families in other countries, to learn from them, to share knowledge and good practice and to motivate each other to go on with lobbying for the interests of people with Down syndrome.

And of course it is also a lot of fun to meet and to visit each other from time to time. The beginning of our friendship was more accidentally, we happened to meet each other at a conference. But now we have EDSA and you can try to get friends via the EDSA Family Exchange Programme. Building bridges between families who have a child or relative with Down syndrome and are living in different countries is the aim of the EDSA Family Exchange Programme

It is worthwhile and an enrichment for all. Our children with Down syndrome benefit from the contact with other youngsters in Europe. It widens their view, they experience another culture, see new  places, make them tolerant and they might even try to learn some words in the other language.

Cora Halder

So why not use the Family Exchange Programme? How does it work?
Here you find information:

Meeting families in Turkey

One of the best memories for me and my son Lev from Kiew/Ukrania this year is definitely our participation in the EDSA Family Exchange Program (FEP). When we decided to spend a couple of weeks in a resort in Turkey I contacted FEP coordinator in Down Sendromu Derneği (Turkish Down Syndrome Association) with a request to find out if there was a family living in the area who would like to meet with us. And soon I was a member of a group of four(!) families, exchanging pictures of our children on WhatsApp and planning a meeting.

Tania Mykhailenko and her son Lev meeting up with three Turkish families.

We stayed in Club Felicia Village and I was very grateful for their permission to organize our meeting there. So on the designated day we met sweet Amine, handsome Osman, beautiful Asude and their parents. We spent a few hours exchanging knowledge and experience, sharing our hopes and doubts, learning from each other similarities and differences of lives in Ukraine and Turkey.
All in all, it was a very good meeting. Even a language barrier couldn’t stop us. Whatever knowledge of English we had we used it. It was definitely fun and I’m adding a picture to prove it.
If your organization is a member of EDSA and you want to take part in the Family Exchange Program go to the website and register. Make friends over the Europe, expand your horizons, learn new things, share experiences. Make all Europe your home. Enjoy!

Tania Mykhailenko


Family Exchange Programme (FEP)

Button: Read a testimonialAs EDSA, one of our aims is to build bridges between families who have a child or a relative with Down syndrome and are living in different countries. We believe that changing experiences and see different cultures are a great possibility for all of us. Therefore we designed a website and create a platform called Family Exchange Programme (FEP).

About FEP Programme

The aim of that platform is to create a network between families who have a child with Down Syndrome. Families can visit and host each other in their homeland.
Once you become a member of the network you can offer a service to a family or free accomodation in your house etc. who wants to visit your country. Same way you can see other families’ offers and choose one of them. Please ask costs before deciding your visit. Families don’t have to obtain free services like free tickets of city tours etc. Quality and kind of services are up to the family. You may be a host or a visitor or both.
Your personal information will not be shared with third parties. But every membership have to be approved by member’s local organization. Therefore when you want to become a member of this platform, your informations will be shared with your national/local organization for approval and after your membership is confirmed, all informations that you gave will be seen by other members of the platform.

It is very easy to use the website.

  1. You create an account by using “Sign Up” button
  2. The account will approve by your association to obtain the account security.
  3. After approvement you can use the platform. Just “Sign In”!
  4. You can create an invitation by using “Create Invitation” button or you can View Invitation by using “View Invitation” button
  5. You can view all invitations or filter by using “Search” button
  6. In the home page: When you scroll down you can see all countries in the programme and number of invitations related with that country.

We hope you will enjoy your journey through different cultures!