Coronavirus – European Down Syndrome Association (EDSA)

Illustration of Coronavirus (Covid-19)

On this CORONAVIRUS (COVID-19) special page we have compiled a list with helpful links from organizations in various countries.

Some resources are also available in easy reading language.

International organizations

Down Syndrome international (DSi):
https://w ww.ds-int.org/news/down-syndrome-covid-19-clinician-survey
https://www.ds-int.org/pages/category/coronavirus-information-updates
https://www.ds-int.org/Listing/Category/coronavirus-information-updates
https://www.ds-int.org/rights-coronavirus
https://www.ds-int.org/what-we-know-about-coronavirus
https://www.ds-int.org/down-syndrome-and-coronavirus
https://www.ds-int.org/resources-on-coronavirus

European Disability Forum (EDF):
http://www.edf-feph.org/covid19members
h ttp://www.edf-feph.org/newsroom/news/covid-19-resource-page
http://www.edf-feph.org/newsroom/news/updated-statement-protection-persons-disabilities-institutions-deafblind-persons
http://www.edf-feph.org/newsroom/news/open-letter-leaders-eu-and-eu-countries-covid-19-d isability-inclusive-response

Global Down Syndrome Foundation:
https://www.globaldownsyndrome.org/global-statement-covid-19/
https://www.globaldownsyndrome.org/wp-content/uploads/2020/03/GDSF_COVID19_INFO_SHEET.pdf
https://www.cdc.gov/coronavirus/2019-ncov/index.html

International Disability Alliance (IDA):
http://www.internationaldisabilityalliance.org/content/covid-19-and-disability-movement

Matthew Foundation
https://www.thematthewfoundation.org/covid-19.html

T21Research Society
COVID-19 Newsletter
First COVID-19 survey results
COVID-19 and Down syndrome T21RS Survey, Report October 22, 2020

UN – United Nations:
http://www.internationaldisabilityalliance.org/content/covid-19-and-disability-movement
http://www.internationaldisabilityalliance.org/blog/idas-letter-world-health-organisation-response-covid19-pandemic

Worldometer:
https://www.worldometers.info/coronavirus/

UK and IRELAND:

Down’s Syndrome Association – UK:
https://www.downs-syndrome.org.uk/coronavirus-covid-19/

Down Syndrome Ireland (DSI):
https://downsyndrome.ie/dsi-hse-covid-19-testing/

Down Syndrome Medical Interest Group (DSMIG) – UK+Ireland:
https://www.dsmig.org.uk/covid-19-and-down-syndrome/
https://www.dsmig.org.uk/wp-content/uploads/2020/03/infection-DSA-Journal-141-Spring-Summer-2020_DSMIG-pages-1.pdf

Down’s Syndrome Scotland:
https://www.dsscotland.org.uk/about-us/news-and-news-archive/

Royal College of Paediatrics and Child Health (RCPCH) – UK:
https://www.rcpch.ac.uk/key-topics/covid-19
https://www.rcpch.ac.uk/resources/covid-19-guidance-paediatric-services

USA:

DSMIG USA
https://www.dsmig-usa.org/resources/BOD/final%20abbreviated.pdf

LuMind IDSC Foundation:
https://www.lumindidsc.org/t21covid/
https://www.lumindidsc.org/covid-19-and-preserving-human-rights-for-people-with-down-syndrome/

National Down Syndrome Congress (NDSC):
https://www.ndsccenter.org/programs-resources/covid-19-resources/

National Down Syndrome Society (NDSS):
https://www.ndss.org/covid-19-fact-sheet/
https://www.ndss.org/ndss-covid-19-down-syndrome-resource/

Information in other languages

BOSNIA-HERZEGOVINA:

Downsy:
http://www.downsy.ba/covid-19-i-down-sindrom/
http://www.downsy.ba/12407-2/
http://www.downsy.ba/covid-19-ko-stiti-osobe-s-invaliditetom-un-ekspertkinja-za-ljudska-prava/

CZECH REPUBLIC:

DownSyndrom CZ
(Společnost rodičů a přátel dětí s Downovým syndromem, z.s.):
http://www.downsyndrom.cz/aktuality/778/informace-o-koronavirovem-onemocneni-metodou-jednoducheho-cteni.html

FRANCE:

Association Française pour la recherche sur la Trisomie 21 (AFRT):
https://www.afrt.fr/

Fondation Jérôme Lejeune:
https://www.fondationlejeune.org/institut-jerome-lejeune-information-importante-plan-de-prevention-covid-19/

Trisomie21 France:
https://trisomie21-france.org/recommandations-sur-le-coronavirus-covid-19-chez-les-personnes-avec-trisomie-21/
https://www.gouvernement.fr/info-coronavirus/espace-handicap

GERMANY:

Deutsches Down-Syndrom InfoCenter:
http://www.ds-infocenter.de/
http://www.ds-infocenter.de/downloads/Infos-zum-Coronavirus_Dr.Hammersen_2020-03-27.pdf
http://www.ds-infocenter.de/downloads/2020_03_19_DGPK_Stellungnahme_Corona_Virus.pdf
https://www.dakj.de/wp-content/uploads/2020/03/dakj-dgpi-2020-corona-stand-0203.pdf
https://www.lebenshilfe.de/informieren/familie/empfehlungen-zu-covid-19-corona-virus/

ITALY:

AIPD:
https://www.aipd.it/site/covid19-e-sd/

COORDOWN:
https://www.coordown.it/notizie/scarica-la-guida-sul-corona-virus-ad-alta-leggibilita/

NETHERLANDS:

Stichting Downsyndroom (SDS):
https://www.downsyndroom.nl/praatkaarten-over-corona/
https://www.downsyndroom.nl/veel-antwoorden-over-downsyndroom-en-coronavirus/
https://www.downsyndroom.nl/prenten-voorleesboekje-over-corona/
https://www.downsyndroom.nl/veelgesteldevragen/het-coronavirus-en-downsyndroom/

SLOVAKIA:

Spoločnost Downovho syndrómu na Slovensku:
https://downovsyndrom.sk/v16/node/2198

SPAIN:

Down España:
https://www.sindromedown.net/noticia/down-espana-pide-colaboracion-a-las-familias-de-personas-con-sindrome-de-down-afectadas-por-coronavirus/
https://www.sindromedown.net/noticia/pepe-borrel-sobre-el-coronavirus-el-riesgo-esta-en-las-caracteristicas-clinicas-individuales-y-no-en-tener-sindrome-de-down-o-no/

Down21:
https://www.down21.org/noticias/3432-coronavirus-y-sindrome-de-down-iniciativas.html
https://www.down21.org/noticias/3434-t21rs-inicia-su-estudio-sobre-coronavirus-y-sindrome-de-down.html

SWEDEN:

Svenska Downföreningen:
https://www.svenskadownforeningen.se/angaende-coronaviruset/
https://saraslattlasta.wordpress.com/2020/03/11/corona-covid-19-pa-latt-svenska/

SWITZERLAND:

Association Romande Trisomie 21:
https://www.t21.ch/2020/03/actualites/corona-virus-informations-en-langue-facile-a-lire/
https://www.bag.admin.ch/bag/en/home/krankheiten/ausbrueche-epidemien-pandemien/aktuelle-ausbrueche-epidemien/novel-cov/leichte-sprache.html

TURKEY:

Down Türkiye:
https://www.downturkiye.org/saglik

Information in easy reading language

In English:

About easy-reading guides, the British Down’s Syndrome Association has already published on their website an easy-reading leaflet about coronavirus for people with DS:
https://www.downs-syndrome.org.uk/coronavirus-covid-19/dsa-resources/

In French:

En langage facile à lire et à comprendre

In German:

https://www.sozialministerium.at/Coronavirus—Sprachen/Leichter-Lesen—Corona-Virus-in-Oesterreich–Die-wichtigsten-Informationen.html
https://corona-leichte-sprache.de/page/6-startseite.html
https://einfachstars.info/blog/21297-informationen-zu-corona-in-leichter-sprache.htm l

In Romanian:

Videoclip about COVID-19 in easy language
in Romanian:
https://www.facebook.com/InfoSindromDown/videos/515183389372186/
in English:
https://www.facebook.com/dsleisureproject/videos/217277356010823/